Monica Needs Reliable Wheels To Travel
Our team recently met Monica who is spastic quadriplegic due to Cerebral Palsy and can only move her arms and head a little and unable to travel at all. Currently she is trying to raise funds to get a wheelchair van. So we had a little conversation with her.
Ladla Team : Let’s talk a bit about you and your educational and working background?
Monica : I’m a high school graduate. In the past I worked for Easter Seals stuffing envelopes with the help of an aide. I had to stop doing that because of pain. I’ve had a couple operations since then and my pain is 99% gone now! I have a couple new job programs available once I have reliable transportation again. I’m excited about going back to work!
Monica : I set goals all the time. Even though I graduated high school, they did not teach me to read. My eyes do not “talk” to each other so the teachers didn’t know how to teach me the right way. I know that now because I have been learning to read with my auntie for the past 4 years! Most of my goals are either related to being able to do a physical task or learning something educational, like phonics & reading.
Ladla Team : How does your disability effect your day to day life?
Monica : I am a quadraplegic. I can only move my arms and head a little bit. I get therapy all the time to keep my muscles from getting stiff and to try to teach my brain & muscles to do things like brush my teeth, comb my hair or feed myself. I can’t do these on my own yet but I’m working on it! I can use my hand a little to steer my power wheelchair. Other than that, I have family & home care aides who help me. They are my arms and legs for me. They drive me to my appointments and outings but we don’t do much lately because the van is dying.
Ladla Team : Can you explain community inclusion & advocacy and how they relate to travel?
Monica : Sure! I can’t get in everywhere because of my wheelchair. Advocacy is when you speak up or fight for disability rights, like fighting for the post office to install a ramp so I can come in like everyone else. You might not realize it but there are so many places I can’t get in to! Community inclusion is about not staying isolated in my house with my family & aides all the time. Beside the fact that I want to start traveling, even just running my own errands is a huge positive when it comes to community inclusion. Or going out for coffee, to a dance or karyoke. I love to sing & would love to try karyoke! We have to have reliable transportation so I can get out in the community (and get to my medical appointments).
Ladla Team : What are your plans & hopes for the future ?
Monica : Besides having reliable & comfortable transportation in order for me to go to the White Mountains in New Hampshire, all my hopes for the future have to do with “quality-of-life”. I want to get a job, I want to be able to go somewhere if I want to, I want to stay pain-free, I want the same rights & opportunities able bodied people have.
Ladla Team: How can people find you and follow you online?
Monica : I have a fundraiser to get a reliable wheelchair van on GOFUNDME. People can either go there & search “MONICA 06088” or go directly to https://www.gofundme.com/n41dto . I try to send updates a couple times a week to let people know what I’m doing, how things have been going & to share exciting or fun things!
After conversation with Monica we really felt for her and so sharing our experience here so that anyone reading can help her raise funds for a reliable wheelchair van so that she can easily travel and enjoy the surroundings like we do. You can fund her herehttp://www.ladla.net/misc/monica-needs-reliable-wheels-to-travel/http://i2.wp.com/www.ladla.net/wp-content/uploads/2016/03/wheelchair-van.jpg?fit=640%2C480http://i2.wp.com/www.ladla.net/wp-content/uploads/2016/03/wheelchair-van.jpg?resize=150%2C150Miscfunding for wheelchair van,monica gofundme